Zoe Holtz Henry

BIGGER AND STRONGER- ONE DAY AT A TIME...

Wednesday May 5, 2010

clock May 5, 2010 11:55 by author Shannin

Just a few pics from the previous weeks I haven't had time to post.  Zoe's had lots of adventures lately.  Zoo trips with her friends  (another CDH baby, his brother and the son of one of Jason's childhood friends).  Trips to the park with Eva and Naomi.  And goofy time in the car on the way to her friend Lily's 2nd birthday party.  Boy, does Zoe love to ham it up for the camera

 


seeing elephants for the first time

Checking out the leopards

 


in love/awe with the walrusses

 


At Battle point park

 


Frog Rock and ladybug at Battle Point Park

 

 


Playing Peek-a-Boo with the Sunday Paper

 


And 3 little maids all in a row-  at Lily's 2'nd birthday party


Wednesday May 5, 2010

clock May 5, 2010 11:37 by author Shannin

So we got home last night around 6:30.  Zoe did great.  her cardiac cath took around 2 hours.  She came out of anesethia great, a little groggy and cranky but not needing much oxygen at all.  I got to go back to the recovery room with her because she was so upset- probably due to the tubes and moniters attatched to her.  She settled down enough to get moved to the outpatient recovery room where Jason and I sat with her for the next four hours.  She did great off oxygen for a while but towards the end of the afternoon she started to get a bit blue so we put her on a whiff of O2 for the ride home and the night.  She is still on it this morning and proably will be for a few days.  She's never had surgery before when she wasn't on O2 and I think she is still delicate enough that she need a bit of support- especially when she is so exhausted.  She was back to her happy, chatty self for the car ride home.  The most exciting part of the car trip home was that we stopped to get some dinner at McDonalds and Zoe sucked/ mauled french friesin her mouth for the next hour or so-- SOOOO Exciting!  I told her I'd go get her feench fries every day as long as she'll put them in her mouth.

The results of her cardiac cath were pretty much as expected.  Her lung pressures are still in the 70's (normal is 30's).  The blood flow between the upper chambers of her heart is only going one direction through the home in her heart- this is good- it means pressures are decreasing enough that blood flow is more effective.  Her lungs also responded well to O2 and Nitric gas which means that they are still growing and able to expand.  There was talk about potentially closing the ASD (upper hole in her heart) but they decided not to because for right now it is still helping her.  She also has a shunt right outside of her heart (PDA) that is largerthan was originally thought and might be contributing to the hypertension, so now her cardiologist is thinking about closing that off and seeing if that might help lower lung pressures.  We won't know for a few months what the desicion on that will be, but it should be another procedure that can be done through a cardiac cath, not open heart surgery.  We'll keep you posted.    

Zoe's doing good today, still abit sleepy and snuggly, but nothing wrong with that.  She has to be a bit careful for a day or so about too much activity so Zoe and I are going to have a movie day and chill out on the couch- YEAH!  Thank you so much for all the well wishes sent our way, we appreciate them so much.  Zoe never ceases to amaze us with her strength and will to live.


waiting for surgery




French fries are yummy!!!!

 



Tuesday, May 4, 2010

clock May 4, 2010 09:10 by author Shannin

Zoe has her cardiac Catheterization today.  We got up super early to be on the 5:20 boat.  Zoe is such a trooper though, no complaints just lots of cute smiles.  Check in took a few hours and then I got to walk back to the operating room with her since she was looking a  bit terrified.  They put her out in a few seconds and then kicked me out of the room.  Jason and i are now waiting anziously to find out how it goes, hopefully zoe will do great and not need any further oxygen after it's over.  She should be done around noon, and I'll post some results when I get a chance.  I think this surgery is harder than ony other one we have had to send her off to.  For her other ones, she was sick and it was something that needed to happen.  This one is just routine and something about sending a perfectly healthy kid into surgery is really frightening.  They are checking her lung pressures and the hole in her heart to see how her pulmomary hypertension is resolving.  Send Zoe lots of prayers and we'll let you know how it goes.

 



About us, the Strom-Henry clan

We are the parents of Zoe Holtz Henry;  Jason Henry and Shannin Strom-Henry.  We live on Bainbridge Island, WA.  where we both grew up, moved away from and then moved back to.  Zoe will be growing up on the same property that I grew up on, except she will be living in her great grandparents cute pink farmhouse.  She will someday be going to the same elementary school that her grandpa (Bapa Toms) went to, I went to, and her great grandma Strom used to teach at.  Zoe will be lucky enough to be raised much like Jason and I were, right next door to both sets of grandparents and lots and lots of cousins, aunts and uncles and with lots of access to fun outdoor places to make forts in and ride bikes.  This is why Jason and I moved back to Bainbridge; to give Zoe the chance to be a normal child and not grow up too fast.  But before we get there, we're going to get through all of this, so here's the story to date...

 

You can email me any questions or comments at shanninstrom@gmail.com

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