Big days for the three of us.  We had our meeting with the pulmonlalogist, the neo natologist, and the case worker yesterday.  basically what was decided was that Zoe's case of Pulmonary Hypertension is severe and that something needs to be done , whether here or at Children's in Seattle.  The pulmonologist sent a letter to the insurance company stating why it is medically necessary to have Zoe transferted up and the case worker followed up with phone calls.  Nothing was decided yesterday as we were waiting for the insurance companies answers.  She needs to a cardiac catheter test done, which is when they insert a catheter into her heart to check the pressures there.  It is the only true way of telliing how severe things are.  The ECHO is really good at estimating, but this is the only for sure way.  When they do the cardiac catheter they can test different elements such as oxygen and nitric to see if when they are applied, Zoe's pressures drop.  This will help determine what the next step is.  If she has to go back on Nitric she would have to stay in the hospital, but if she only needs oxygen and the viagra she could likely go home within a few weeks. 

Soooo... today the insurance company said they would cover the transport, so we are heading up to Seattle Children's at 8:00 AM thursday via ambulance (Jason gets to ride along- he's very excied).  We don't really know much more info than this right now.  They are hoping to get the cardiac catheter done on thursday or friday so a plan can start to be formed, but it all depends on how her check in goes.  She will be on of the regular medical floors at childrens, not in the NICU or the PICU, so possibly we might be able to have a few more visitors but we'll  keep you posted (get your flu shots, wash your hands and don't be remotely sick!!)  I'm excited to be going back closer to home but it's been a really emotional day for me.  I've gotten very attatched to the nurses and doctors down here, they have helped us get through some really tough times and I've become really attatched- it's a bit of a security blanket.  The thought of doing this all over again is a bit daunting.  It will be great to be hooked up with all the doctors and specialists Zoe will need to see over the next few years and this is the easiest way to do it.  It's still so scary to think about how far Zoe has come and yet we still have this huge hurdle to get over, but the hope is that the specialists at Children's will have some great ideas to try.  Jason and my sister, Naomi, are coming down tomorrow to help pack and clean and then we'll all head up north around 8:00 on Thursday. 

Thanks for all your prayers and support and hopefully we can see some of you soon in Seattle!!  Zoe's been doing amazing latley.  She has been able to drink up to 45 ml at some feedings and is now up to 10lbs 9 oz and 23.5 inches.  She gets more beautiful and interactive each day.