Another emotional roller coaster day.  Zoe is doing fantastic with her feedings.  She has taken some food either by bottle or breast at each feeding today, anywhere from 20-40 ml-  still not too close to the 90 ml we need to get, but she's working on.  She seems to have figured out the suck/swallow thing, she just needs to build her stamina and not fall asleep soo soon.

Now for the not so good news,  the pulmonalogist came in today and said he had talked to the cardiologist and that Zo'es pulmonary hypertension is worse than he had thought.  He is reccomending that she be transferred to Seattle Children's Hospital where she can see experts that deal with newborn pulmonary hypertension.  He doesn't think it is safe for Zoe to go home at all until more tests are done.  The pulmonary specialists in Seattle will want to run their own tests and might have different ways of combating her issues and so therefore it is better for her to go up there than to start treatment here.  The problem is transportation to Seattle Childrens, we can't drive her there because of her health issues and sometimes insurance companies won't cover transport since they have a pulmonary doctor here at Emmanual.  The Case worker and the doctors will be working on figuring this all out over the next week or so and seeing how to get Zoe to Seattle.  The other part of wanting her to go directly to Seattle Childrens is to keep her as an in-patient.  I guess it is easier to follow up as in-patient to in-patient than to be an out patient and then try and get in with the correct specialists.  Whatever the issue, it just makes us sad. We went from thinking Zoe would be going home in a few weeks and need lots of follow up care to looking at another stay in another hospital.  She still has a good shot at making it, but they deal with more of these heavy duty pulmonary hypertension cases in Seattle than her, so they want us to be in the right place for her.  At least we would be in Seattle, although I would miss the nurses and doctors that have taken such good care of Zoe here,  we've grown kind of attatched.  So we'll  see what happens in the next week or so.  We have the big meeting on Monday to figure out more details.

My Mom headed back  to Bainbridge today after spending the last few days snuggling wih Zoe (and taking an infant CPR class).  Jason will be down tomorrow and can't wait to see Zoe, she's been smiling up a storm lately.