Well, tomorrow is the big day- the cardiac catheter. Zoe had her VQ scan yesterday which tests for blood clots in the lungs and she didn't have any. They didn't necessarily think she did but it's one of the good things to check off the list. The poor kid had to have an IV put in to run the chemicals in and it took 5 attempts to get it in- she was not happy!! Other than that we have started training to learn what we are going to have to do when we get home. Today I learned how to check placement on Zoe's feeding tube and how to flush it at the end of a feed.
Zoe's Cardiac Cath is tomorrow at 1:30. They will be measuring the pressres in her lungs and trying a few different vaso-dialtors like nitric, oxygen and room air. As of right now, the plan is to start Zoe on a drug called Bosentan which can be given with her feeds. this is fantastic because it wouldn't require a stay in a hospital, just check ups once month. If this all falls into place we could potentially be home in a few days!! I'm trying not to get too excited, but how amazing would that be? You can read more information about pulmonary hypertension and the drugs to treat it at www.phassociation.org
We'll keep you all posted as to how things go tomorrow and when we might be home. Zoe's doing great right now, still working on feeds and resting lots.